Thinking Persons Guide to Autism

EPISODE 104
Thinking Person’s Guide to Autism:
A Discussion with Shannon Des Roches Rosa
and Carol Ann Greenburg

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Show Notes

Shannon Rosa and Carol Ann Greenburg are parent-professionals and partners in developing and sharing their on-line resource, A Thinking Person’s Guide to Autism, one of the very first resources to provide valuable information to the autistic and neurodivergent communities. In their own words, the mission of TPGA is to be a a one-stop source for carefully curated, evidence-based, neurodiversity-steeped information from autistic people, parents, and autism professionals. They emphasize that autism acceptance is not merely noble but necessary—and are separate matters from the autistic and other autism communities’ never-ending fights for medical, legal, social, and educational accommodation. The goal of TPGA is “to help  fast-forward past society’s rampant autism fabrications and negativity, by providing clear, thoughtfully presented, balanced, and referenced information”.  Barry and Dave discuss TPGA in the context of Shannon and Carol’s experiences as parents, and as advocates for the autistic community.

 

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(courtesy from A Thinking Person’s Guide to Autism)

 

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Featuring

Shannon Des Roche Rosa

SHANNON DES ROCHE ROSA

Shannon Rosa is the senior editor and co-founder of Thinking Person’s Guide to Autism, an autism and neurodiversity information and advocacy nexus. Her writing and speaking about disability and parenting has appeared in the Washington Post, Spectrum, and NPR.

Check out her article “How listening to autistic adults helped me understand and support my son” on The Washington Post

Carol Ann Greenburg

CAROL ANN GREENBURG

Carol Ann Greenburg is a “mostly speaking autistic mother of a mostly non-speaking autistic son”. At 21, Carol is an editor for Thinking Person’s Guide to Autism TPGA, and her son is on track for a career as an artist. Carol has recently broadened her scope as a non-attorney special education advocate to support and include disabled clients of all ages.

…and Continue the Discussion

Do you have a book or podcast club? If so, you may use this discussion guide to facilitate a conversation about this episode.

1) What was the initial motivation in developing a Thinking Person’s Guide to Autism? How did Carol and Shannon’s personal experiences contribute to that motivation

2) Shannon expresses some significant concerns how the popular media has represented autistic people and the autistic experience about in the past and currently? Which concerns were most striking to you, and do you share similar concerns based upon your experience as an autistic person, parent, or professional?

3)  What are the most significant “take-aways” triggered by this discussion that will impact your attitude, beliefs and actions?

ACKNOWLEDGMENTS

Music

Matt Savage, courtesy of Savage Records

Matt Savage is an autistic jazz musician, composer, and bandleader. Matt has collaborated with jazz greats like Chick Corea, the Ellington All Stars, Chaka Khan, Wynton Marsalis, Bobby Watson, Clark Terry, Jimmy Heath, Jason Moran, Arturo O’Farrill, John Pizzarelli, Joshua Redman, Terri Lyne Carrington, Jon Faddis, Jerry Bergonzi. Donny McCaslin, and more. He has recorded more than a dozen records and graciously contributes the music for Uniquely Human.

Production and Sound Design

ELEVATEDSTUDIO

Uniquely Human: The Podcast is produced, engineered, and edited by Elevated Studio in Denver, Colorado. Owned and operated by co-host Dave Finch, Elevated Studio produces digital media assets and content strategies for the electronics, entertainment, and lifestyle industries.